Karl Sehmbi from Redbridge is raising money for Richard House Children’s Hospice this September by walking 26 miles, the distance of a marathon.  

Karl’s late son Arun, battled Battens Disease for 10 years; a neurological disorder so rare it was diagnosed only 6 months before his passing. In 2011, an MRI scan confirmed the deterioration of Arun’s brain matter; this was a devastating moment for the family, as it meant Arun’s health would slowly deteriorate. Fortunately, Arun was able to access quality care locally, at Richard House Children’s Hospice and Great Ormand Street, where he was treated by one of the world’s top  neurologists, who 25 years of his career, had never diagnosed the neurological deterioration of both the grey and white brain matter of a patient before. 

 Karl and his incredible family never lost hope. Karl said: 

 “However strong Arun was, is what drove us to keep going” 

 Over the course of 4 years, from the age of 16 Arun received care at Richard House Karl continued: 

 “We loved it straight away, the atmosphere at the hospice was so welcoming as soon as we walked in. We enjoyed visiting day care and the planning of our respite days was smooth sailing. From the word go Richard House was a safe haven for us and even now I still think of them daily.” 

This September, Karl will be walking a marathon in the honour of his son who sadly passed away in summer of 2018, and in aid of Richard House. The hospice relies on the generosity of donors to carry out their vital work for seriously ill children and their families and this year needs to raise £4.2 million to continue to do so. Richard House’ services range from specialised clinical care, to art, music, and dance therapy; giving seriously ill children the opportunity to explore what is happening to them in a safe environment, through to end of life care and pre and post bereavement support for all the family. Charlie Grey, Community Fundraiser at Richard House said: 

“We are so grateful to Karl for taking on this incredible challenge in memory of Arun and to support our work. Karl’s story is a shining example of the struggles that families face when a child is diagnosed with a serious illness. This is why at Richard House, we aim to be there to support families every step of the way after diagnosis, and we hope that Karl’s fundraising and efforts to raise awareness of our work will allow us to reach more local families that need support.” 

Without your support Richard House would not be able to provide the care they do for families like Karl’s. You can give to Richard House and Karl’s walk by visiting his sponsorship page, support a life today https://www.justgiving.com/fundraising/kuldip-sehmbi